We are Joe, Kayla, and Gordon Clark, a family living and working aboard SV Animaashi. After Joe was diagnosed with an incurable autoimmune disorder, our life changed drastically. Sailing became a medical necessity, allowing us to manage his health by navigating the southeastern U.S. coastline, staying in climates where fresh air and open hatches provide relief.

As a photographer, Joe captures the stunning landscapes of national parks and public lands we visit. His work is not just a means of survival for our family but a way to raise awareness about the importance of conserving these natural spaces. From the Great Lakes to the coastal wilderness, our travels are driven by the desire to both explore and advocate for these vital areas.

Our seasonal journey takes us north in the summer and south in the winter, always seeking new locations that inspire art and highlight the need for environmental protection. Through the sale of Joe’s photography, we continue to navigate the challenges of living with chronic illness, while contributing to a cause we believe in.

Raising Awareness About Autoimmune Challenges

Living with an allergy-triggered autoimmune condition has profoundly affected our lives. Joe suffers from systemic inflammation throughout various tissues in his body, leading to debilitating symptoms like cognitive difficulties, crippling arthritis, and breathing problems. Despite seeing multiple specialists, no cure has been found, and medications have only worsened the condition.

The only treatment has been avoiding the allergens that trigger symptoms, which has made constant travel a necessity. However, this medically required nomadic lifestyle has created significant challenges. Despite bringing these facts to the attention of various government agencies, they have refused to make any accommodations because we lack a permanent address. While Michigan residency remains our legal status by statute, traveling through other states prevents us from applying for residency elsewhere.

This situation leaves us in a difficult position, unable to access essential healthcare or disability support services that could help ease the financial and health burdens. It’s a stark reminder of the obstacles faced by disabled individuals in the U.S., especially those who must take extraordinary measures, like constant travel, to manage their conditions.

 

Art as a Means of Survival

In addition to managing life on the water and the challenges of a chronic illness, photography has become not just a passion but a crucial means of supporting our family. Each photograph represents a unique moment captured from the beautiful and often remote locations we visit. By purchasing my artwork, you’re not only adding stunning visuals to your home but also directly helping us continue this journey of resilience and healing. Explore the gallery and discover pieces that speak to you. View art at the Glass Lakes Photography website.